My surgeon had asked me to call today to report to him about how I felt with the Medrol dose pack. He called and I was really hurting so he probably heard more than he thought he would....I told my hubby what I said and he said "well the surgeon certainly didn't have to read between the lines on that one!"
He didn't have a lot of answers (do they ever?) but he feels that my symptoms have changed enough to warrant another MRI. If we do this one and there is absolutley no change then I will accept that this is just my life. I'm not convinced that something hasn't changed in there since I have so many new symptoms and more pain and until I know for sure I can't just accept this yet.
SteroiRAB.....I asked him since they helped what does that tell him about what is going on? He said obviously inflammation...I asked should I STILL have inflammation after 9 months???? His response was flare ups.
I asked "tell me now and be honest..is this just my life and the way I will be for the rest of my life?". He said no he hasn't given up on me yet and is not ready to throw in the towel. He said "we will work and make it better". He really is a very sweet guy but I think he just doesn't do well with surgeries that don't completley fix the problem. I told him my quality of life sucks right now and that I am a B..ch most of the time (yes I said that word). He did actually listen and was very understanding.
He said we may need to go back to the PM, the infamous Dr. M. I said he would need to find someone else that I will never see him again. I then told him what I thought of Dr. M in no uncertain terms....and I told him that I knew I was not the only one with issues with him. He agreed although he said he still feels he is the best "sticker" (thought that was a new way of putting it). He will think about who else I can go to if I need someone. He does feel that we may get to the point of a SCS though.
So now that I've shared way more info than you needed to know.....sorry....he wants to see me after the MRI and will then make a plan.
Guess I could have left the rest out right? I'll claim "brain fog"!
Deb
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